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Jun 10, 2025

How to Live Well After a Dementia Diagnosis: A Guide for Families

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Finding Out a Loved One Has Dementia

Learning that a loved one has Alzheimer’s disease or another form of dementia can be overwhelming. While there is currently no cure, there are ways to enhance quality of life and stay connected throughout the journey.

It's normal to feel a wide range of emotions—sadness, anger, fear, even guilt. Allow yourself and your family members to feel these emotions, but don't let them take over. Knowledge, planning, and support can help you cope.

Understanding Dementia and Planning Early

An early diagnosis offers time to:

  • Learn about the different stages of dementia
  • Make informed decisions about care and support
  • Create meaningful memories in the present
  • Take proactive steps to maintain quality of life

Alzheimer’s and other dementias progress at varying speeds. Understanding what to expect can reduce uncertainty and help you feel more in control.

Tips for Living Well With Dementia

Set Personal Goals and Future Plans

Receiving a dementia diagnosis doesn’t mean putting life on hold. Revisit your bucket list—whether it's reconnecting with old friends, going on a dream trip, or simply enjoying new activities close to home.

Stay Active With Hobbies and Movement

Hobbies and exercise are great for cognitive and emotional health. Share your skills with others—knitting, storytelling, music, or gardening—to create lasting memories. Regular movement, even light walking or chair exercises, supports both brain and body.

Use Tools That Support Independence

Maintain independence through simple strategies like:

  • Using smartphone apps for reminders
  • Labeling items with sticky notes
  • Keeping important phone numbers by the phone

These small tools can help ease daily routines and promote confidence.

Explore Clinical Trials

Participating in clinical trials offers a sense of empowerment and helps advance research toward future treatments. Learn more through trusted organizations like the Alzheimer’s Association or NIH Clinical Trials.

Become a Community Advocate

Joining advocacy efforts builds purpose and community. National organizations such as the Alzheimer’s Association and Alzheimer Society of Canada offer ways to get involved at local, state, or national levels.

Prepare Your Home and Living Environment

Focus on Home Safety

Creating a dementia-friendly environment is crucial. From securing rugs to adding nightlights, small changes can significantly reduce risks and ease everyday living.

Download our Home Safety Checklist to help identify potential hazards and make your home safer for someone living with dementia.

Consider In-Home Care Support

Professional caregiving can ease daily responsibilities and offer respite for family members. Check out our Home Care Solutions Guide to learn how to choose the right care partner.

Plan Ahead for Future Care Needs

As dementia progresses, individuals often require help with:

  • Managing finances
  • Completing daily tasks like cooking or bathing
  • Staying safe at home
  • Traveling or driving

Understanding when and how to bring in additional care—such as Home Instead's personalized in-home support—can ensure your loved one remains comfortable and dignified.

You Are Not Alone

Many families are on this path, and help is available. From support groups to trusted podcasts like Caregiver Chats, there are ways to stay informed, empowered, and connected.

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